In his mid-20s, Shane Hoover started planning for his death.
Hoover was diagnosed with valley fever, which is caused by inhaling fungal spores that grow in the soil, in 2010. He took medications for a while that kept it at bay. But he says he could not afford to keep paying for the drugs and, when he stopped, the disease intensified.
“He’d say, ‘I feel my body shutting down. I feel like it’s just a war inside of me that I can’t win,’” his mother, Kathleen Birks, said. “Our conversations became, ‘What do you want me to do with you when you die?’”